Day 9: Men-only fertility forums found useful according to new research

Men-only fertility forums can be helpful to men trying to be an 'emotional rock' for their partners research by Leeds Beckett University has found.

The study, by Dr Esmée Hanna and Professor Brendan Gough in the Centre for Men’s Health at Leeds Beckett and published in the Journal of Health Psychology, analysed the use of a UK men-only online infertility forum.

Dr Hanna explained: “Our previous research has shown that men describe infertility as a deeply difficult experience and seeking help through men-only fertility forums is a source of real comfort and support in an experience otherwise deeply isolating: for both men and women. Much of the support sought was around helping their partners, which is pertinent given that men are often seen to be suffering in silence as the ‘emotional rock’.

Men-only fertility forums

“The men-only nature of the forum gives men confidence to seek support and advice; with many comments being made around the need for collective knowledge above help from friends and family, who were seen as naïve and inexperienced.

“We also found that there is value for men in being able to remain anonymous when seeking help, perhaps linked to the perceived sensitivity and stigma around infertility.”

Despite infertility affecting both men and women equally, and one in six couples being impacted by fertility issues in the UK, it remains an issue in which stigma is particularly pronounced for men, who can view it as compromising their masculinity. Men also report feeling marginalised by medical professionals during fertility treatment and that their main role is to support their partner.

Professor Gough said: “Through understanding how men seek help and the aspects in which they find value, we learn more about the needs of men in seeking help for sensitive health topics more widely, and how we can best support them in times of significant emotional stress.”

The research highlighted the need for men to receive guidance from ‘insider’ men, with the view that friends and family don’t understand and that counselling isn’t for them, leaving them feeling ‘stuck’ in terms of who to approach for support. The forum appeared to fulfil their needs in this important aspect both in terms of feeling like someone ‘gets it’ and seeking specific help when they moved into new territory, such as deciding to stop in-vitro fertilisation (IVF) treatment, providing validation for their choices.

Similarly, the anonymous nature of the forum created a safe space for men, who may naturally be private, to share their emotions. However many of the regular posters did comment on feeling like ‘the weird ones’ for doing so, when so many subscribers to the forum never posted and shared their own views. Dr Hanna suggested that this may be a way of attempting to ward off possible criticism for overt emoting: “Posters referenced their ‘frustration’ and ‘confusion’ about why the forum was not more readily utilised, with the question remaining as to whether sharing is acceptable for men.”

Analysing the men’s choice of language equally revealed that they were keen to distance themselves from traditional methods of seeking help, with one man writing: “It’s not counselling or psychiatry, it’s just getting it off your chest.”

The final key finding of the research was the running theme of masculinity when discussing infertility. The men felt the need to be strong and not show their feelings to anyone, recognising the ways that they thought they ‘should’ behave, as opposed to women who they saw as expressive and more emotionally invested.

In spite of this, the men on the forum were able to voice their depth of distress, contradicting the notion that they can detach from the experience and that women feel more in the context of infertility.

Importantly, some men noted that they had not been encouraged by the approach of professionals to seek help or support, with the perception that they should manage their emotions on their own. One man related how he was not offered counselling or put into contact with other men who had been through the experience. Many also noted that their partners had access to several online forums, whereas they had only been able to find the one forum.

“Men are viewed as being neglected in professional healthcare settings and health professionals can be seen as reinforcing masculine ideals about how men should cope,” Dr Hanna added. “Our research shows that health promotion initiatives should sign-post men facing infertility to such forums for informal help and support, targeting them using ‘male-friendly’ language, offering remote, anonymous support and employing peers to help normalise the experience.

Sources of information for men 

Mr Oliver Wiseman, consultant urologist and Bourn Hall male infertility specialist, discusses common questions that men ask him.

Former patient Richard Clothier runs a facebook group read his story here.

Independent fertility Counsellor Jackie Stewart often sees men on their own so they can get the information they need. She says the following are often found helpful.

“The link below is to a book by Mark Cossey, that is recommended by patients ‘Trying, Love, Loose Pants and the Quest for a baby

“There is a new Facebook group for men being run by Gareth Down which is here:

https://www.facebook.com/groups/mensfertilitysupport/

Gareth made a video for Fertility Network UK which is about the support group: https://www.youtube.com/watch?v=v86rcQyPV6Y

Bourn Hall provides a range of fertility support opportunities that allow one-on-one questions with fertility specialists and find men ask many of the questions.

Free fertility consultations are available at all the Bourn Hall Clinics – Cambridge, Colchester and Norwich – until Easter 2018. To arrange your consultation click here.

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